The singer reveals her eight-month-old twin daughters face a severe muscle-wasting condition

Jesy Nelson has shared deeply distressing news about her eight-month-old twin daughters, revealing they have been diagnosed with a rare and severe neuromuscular condition that will shape their lives in ways she never imagined. The singer announced in an emotional social media video, speaking directly to fans as she described the painful journey that led to the diagnosis.

Nelson explained that her daughters, Ocean Jade and Story Monroe, were born prematurely following a high-risk pregnancy. Their early arrival meant extended time in neonatal care, and initial concerns about their development were put down to being born weeks ahead of schedule. Doctors reassured the family that delays in movement and feeding were common in premature babies, offering hope that the girls would eventually catch up.

As months passed, however, Nelson began to notice worrying signs that could no longer be ignored. Feeding remained difficult, movement in their legs was limited, and progress fell behind what she had been told to expect. What started as a quiet concern soon became relentless anxiety, leading to repeated medical appointments and specialist referrals.

Eventually, doctors confirmed that both girls had spinal muscular atrophy type 1, the most severe form of the genetic condition. The disorder affects the motor neurons that control muscle movement, causing progressive muscle weakness that can impact breathing, swallowing and basic physical function. Nelson described the moment she received the diagnosis as the most heartbreaking experience of her life.

Speaking openly, she shared that doctors have explained her daughters are unlikely to ever walk or fully support their own necks. The condition is life-limiting and demands urgent medical intervention, a reality that left the singer struggling to process what the future may hold. She admitted that hearing these words felt like watching her dreams for her children collapse in real time.

Despite the overwhelming grief, Nelson stressed that her daughters have already begun treatment and are receiving specialist care. She emphasised how crucial early intervention has been, saying access to treatment has given her family hope in an otherwise devastating situation. While the road ahead remains uncertain, she made clear that she is clinging to every sign of progress, no matter how small.

Nelson’s partner, Zion Foster, has also spoken publicly about the ordeal, sharing messages of love and strength alongside photos of their daughters. His words echoed Nelson’s determination to remain positive, even as the family navigates a future shaped by hospital visits, medical procedures and constant vigilance.

The singer explained that deciding to go public was not easy. She said she wanted to raise awareness about the condition and encourage parents to trust their instincts if something feels wrong. Nelson admitted that she wishes she had pushed harder earlier on, hoping her experience might help others recognise warning signs sooner.

Throughout her message, Nelson balanced raw emotion with fierce resolve. She acknowledged moments of fear, guilt and exhaustion, but also spoke about the strength she has found through motherhood. Watching her daughters smile, she said, has become a source of motivation during the darkest moments.

The response to her announcement has been immediate and overwhelming, with fans and fellow artists offering messages of support. Many praised her courage for sharing such a private and painful chapter of her life, while others thanked her for shedding light on a condition that remains largely unknown to the public.

Nelson closed her message by making one thing clear. While her daughters face an incredibly difficult journey, they will never face it alone. She promised to fight for them with everything she has, insisting that love, resilience and determination will define their story more than any diagnosis ever could.